This week

Well so far it has been a roller coaster my Job fired me because they said I had to come back and I could not come back yet. She is so unpredictable she has such good days but when she is bad days I want to just cry. I am so scared for her each day because I really question how she is feeling. She has just learned to communicate but all she says is owwie and points all over her body. That makes me think she is in pain every where. I want her to experience a wonderful life I really wonder what kind of quality this will bring her. I worry about my other kids they seem to wonder when I am going to beable to get out of my house and spend the summers like we used to camping, swimming etc. I wonder how much of a permanentl psychological effect this has on her. I know something I am more prayerful and thankful. Thanks for reading.....